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How I got an FM system for my toddler

FM system
An FM system can be a confusing concept for a parent new to the world of hearing loss. The common misconception is that hearing aids are the be all end all. What is an FM system, anyway, and how can you get one?

What is an FM System?

Simply put, an FM system improves access to sound. It pairs with hearing aids to compensate for distance and background noise. The speaker wears a transmitter and the listener wears a receiver. But FM systems can cost thousands of dollars and most insurance companies do not consider them to be medically necessary.

My two-year-old daughter Raina is hard of hearing and speech delayed. A few months ago, her early intervention team suggested an FM system might help to improve her speech. Since then, we’ve been trying to get her one.

Trying to get an FM System

Have you heard the myth of Sisyphus? It’s about a man condemned to roll a boulder uphill for eternity. As soon as he reaches the top, the boulder rolls back down again. Over and over. Trying to get an FM system for our hard-of-hearing toddler has felt a lot like that.

In the U.S., a child with hearing loss typically will not receive an FM system until they reach school age. Even then, s/he often cannot take the system home with him/her because it is owned by the school district. Some health systems don’t issue insurance referrals for a toddler to get an FM system since they’re typically unsuccessful anyway.

“There’s a difference between medical necessity and educational necessity,” we were told.

“In the U.S., a child with hearing loss typically will not receive an FM system until they reach school age.”

Insert angry-face emoji here.

Not to be deterred, I asked another audiologist at a different health system. That audiologist told us that an FM system might possibly be covered by insurance if we enrolled Raina in daycare a few hours per week. Even then, the odds of getting one were fairly slim and it would probably have to remain at daycare. So, what to do? We didn’t want to add the expense of daycare for an FM system that might not be covered and probably couldn’t come home with her anyway.

Read more: How to fight for the best education for your deaf child

Demonstrating Medical Necessity

Frustrated but determined, I looked to our Health Reimbursement Account (HRA) instead. An HRA reimburses us for certain out-of-pocket medical expenses that insurance doesn’t cover. Our HRA plan maintains a list of qualified expenses. Qualified expenses include hearing aid batteries and hearing impaired telephones, but it makes it made no mention of FM systems. I called our HRA and asked directly. No one there knew what an FM system was or whether or not it would be covered.

“You can have her provider submit a form of medical necessity and we can determine coverage then,” a representative told me.

To demonstrate medical necessity, I gave our daughter’s audiologist her scores from the most recent Battelle Developmental Inventory. In Pennsylvania, a Battelle evaluation is done annually through early intervention. Raina’s Battelle scores showed her as being speech delayed. With Battelle scores in hand, her local audiologist had enough information to complete the paperwork stating medical necessity. She even ordered Raina an FM system on a trial basis so that we could try the different transmitters before we buy one.

Compatibility

Not all FM systems are compatible with all hearing aids. It’s important to run the specs past your audiologist first before buying an FM system. Many used systems, such as those found on eBay, are not eligible for returns. It’s important to verify compatibility before spending the money.

Receivers and transmitters can be mixed and matched to create a unique system. Our daughter wears Phonak Sky V-P hearing aids. Her audiologist told us that this system would be compatible:

Roger Transmitter (Roger Pen, Roger Touchscreen, Roger Easy Pen, or Roger clip on mic)
+
Integrated receivers Roger 18
or
Roger X and Audio Shoe AS18

Our Plan

Integrated receivers are slightly more expensive than the Roger X + audio shoe configuration but enable the hearing aid to remain waterproof and dust-proof. We will go with the integrated receivers to help protect the hearing aid from the kind of wear-and-tear exposure typical of a toddler’s use.

As for the transmitter, I’m not sure which we will prefer until we have a chance to try out both of them. I like how the Roger Pen is sleek and discreet but worry that a pen-sized object will be easily misplaced in our home.

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Literally did a happy dance when Raina got an FM system! Her teacher of the deaf said it’s a game changer. After one session, she was localizing, attending and imitating speech. Her ASL teacher got her to sign AND speak “shh,” which is a sound she never once made in her entire life. My sweet baby is making progress. Like seriously – why don’t insurance companies cover these (expensive but totally worth it) systems for toddlers? Before the FM, she would just silently move her mouth to imitate us speaking. Now, actual sounds are coming out. No doubt this will help close the gap for her. I’m grateful for this tech, her audiologist and the awesome EI team that supports our family. #rogerison #hearinglikeme #phonak #phonakkids #hardofhearing #deafkidsrock #rainashearingjourney

A post shared by Morgan Snook (@_morgansnook) on

The Roger Touchscreen has a very user-friendly interface. It is also larger than a Roger Pen, which means it should be easier to keep track of. Hopefully, it is as durable as the Roger Pen would be.

morgansnook
Author Details
Morgan Snook is a writer from the Pennsylvania Wilds region. She enjoys being outdoors with her husband and two beautiful daughters. Her youngest daughter has mild-to-moderately severe bilateral sensorineural hearing loss, probably genetic. She wears Phonak Sky hearing aids, which she got at three months old.
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morgansnook
Morgan Snook is a writer from the Pennsylvania Wilds region. She enjoys being outdoors with her husband and two beautiful daughters. Her youngest daughter has mild-to-moderately severe bilateral sensorineural hearing loss, probably genetic. She wears Phonak Sky hearing aids, which she got at three months old.
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