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Community Spotlight: I’m a dad of a deaf child

dad of a deaf child

James Knott, otherwise known as @daddyknott on social media, is the father to one-year-old Nelson, who is deaf. As a dad of a deaf child, James has been active in documenting his son’s hearing loss journey through his Instagram and YouTube channel.

I recently had a chance to talk to James about what it is like to be Nelson’s father. 

This is his story:

Kirsten: How has your perspective on life changed since finding out about Nelson’s hearing loss?

James: Our perspective on life has changed at the realization at the lack of deaf awareness and the proud community that the hearing world doesn’t see. That’s why my wife and I feel so strongly about spreading deaf awareness.

We have embraced Nelson’s deafness with a positive attitude and continue to do so. If anyone wants to ask questions, we will always take the time to answer.

“We have embraced Nelson’s deafness with a positive attitude and continue to do so.”

Having a deaf child isn’t something any parent should feel sad about even in the early days. Celebrate and enjoy the journey you are going on, we certainly are and our family have been enjoying the learning curve of deafness and sign language.

 

🎉🎉HAPPY BIRTHDAY 🎉 🎉 So at 9:12am one year ago today our little bundle is joy was born weighing 7lb 12oz at Medway maritime hospital. The birth was a smooth one and we fell in love with our little lad. A bit of VIP treatment from @beckyknott36 sister who is a midwife at the hospital found us in our ow privet room, this is where Nelson had his very first hearing test the first of many. Over the past year Nelson has amazed us so much, picking up signs and doing them himself, how good he has been at all of his many appointments from Maidstone to London he really is a special little boy. Can’t forget to mention the one person who has shaped this super boy, @beckyknott36 you are amazing! #hardwork #instakids #instagram #happyday #daddyblogger #daddyknott #deafness #birthday #birthdayboy #1stbirthday #1today #mummy #daddy #proudmummy #prouddaddy #proudfamily #proudhusband #followme #followtrain #cochlearimplant #cochlearimplantkids #deafkidsrock #friday #love #audiology #phonak #trains #toys #journey #celabration

Ein von @daddyknott geteilter Beitrag am

Kirsten: What is the most rewarding part about having a son with hearing loss?

James: Sign language, without a doubt! We found ourselves in a very fortunate place as my wife Becky has been learning British Sign Language (BSL) for the past five years and has completed her BSL level 3. It was a complete fluke that we now have a deaf son.

Read more: Easily learn sign language by studying these GIFS

Becky having this knowledge of sign language and deaf awareness proven to be invaluable. Becky has given sign language lessons to myself and close family so we can communicate with Nelson. The rewards come when you see your child signing “Mum”, “want”, “light” or any other sign that he learnt. It is also rewarding to see him understand signs when he gets excited when we sign “kiss” or “milk” to him. I can’t stress the importance of sign language enough, even with the amazing cochlear implants that are accessible to children.

Kirsten: What advice would you give other fathers who have children with hearing loss?

James: When we found out Nelson was deaf, I had a bit of a wobble, but Becky soon brought me back around to realize that it is only hearing loss and that Nelson is still completely healthy. Embrace the deafness and learn from it. You may have seen a hashtag knocking around on social media #DeafKidsRock and they certainly do!

Nelson will be transitioning from a Phonak hearing aid to an Advanced Bionics cochlear implant this month. Be sure to follow @daddyknot on Instagram and YouTube to keep up with his journey!

Kirsten Brackett
Kirsten is 23-years-old and originally from Denver, CO, but currently lives outside of Chicago, IL. She has a moderate hearing loss and currently wears Phonak Audéo B-R rechargeable hearing aids.
Outside of working for Phonak, she can be found planning her next trip, exploring the city of Chicago, trying out new recipes in her kitchen, hiking or doing yoga. She loves learning about different cultures and languages, and studies Arabic, American Sign Language and French.

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