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Caring Without Coddling.

Meet the Butchkos…

Chris and Leslie Butchko parent their son Johnny, who has severe-to-profound hearing loss, using the same approach that they take with his older brother: High expectations, clear guidance, and support in all the right places. As parents, riding the fine line between doing too much and demanding too much is never an easy one – especially when your child has hearing loss.

Editorial Staff
I work at Phonak and write for HearingLikeMe.com.

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10 Comments on "Caring Without Coddling."

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suzanne
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suzanne
my son has severe to profound loss in both ears. I believe his audiogram reads 80db and 90db. we have him aided he is 5 months old. We aided him right before he turned 2 months old. I know he is getting something but I dont know what to consider…..implant or just aids. I really want to stay with the hearing aids. Implants can fail the body can reject it and they lose any residual hearing they have. But then I have seen them do amazing things. any advice would help me. thanks
leslie
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leslie
It pleases us to hear that sharing our story is helping others. In many ways, Johnny’s deafness has been a positive experience as we have met so many wonderful friends and have worked with top professionals.

Kirsten: I hope that all is well, and there is a good chance that we will see you this summer.

Kristen
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Kristen
Hey! I know you guys! What a great story! Hope to see you this summer! Kristen
alexlildemo
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alexlildemo
Thanks for sharing. You have a strong family and an awesome outlook on life.
Rbelle27
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Rbelle27
Thank you very much for sharing! I cried the whole time watching this video because it hits SO close to home. My son is 4 years old and was diagnosed a little less than a year and a half ago with hearing loss. The road was a tough one…and yes I grieved for days if not months. But everyday is a challenge and every word I hear is truly a blessing! I went through the Distance Learning for Parents through John Tracy and was fortunate that our son was able to attend an Auditory-Verbal School here in San Diego. It… Read more »
srenne
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srenne
Thanks for sharing I think this is great for parents with young children to hear… I basically did the same with my daughter, Carissa (now 23)… I am glad she has an older brother, Jason… when she was young I held her up to the same expectations I had for him – especially with behavior and she met those expectations…
suzanne
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suzanne
@ Leslie- Thank you for getting back to me! I understand about a CI I am leaning towards hearing aids. It is a hard decision. Some people love their CI’s and others dont. I have talked to people on both sides of that. Your son is such a amazing success his story gives parents hope. Congrats to Johnny for being re-elected for student council!! You and your husband are great parents and your children are so lucky. I am trying to get my son started in AVT but it is with a speech therapist and she is not really familiar… Read more »
leslie
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leslie
Suzanne: I am happy to answer your questions. Cochlear Implant: Johnny got his first pair of hearing aids when he was 16 months old and currently wears the Phonak Naida S III UP hearing aids (which have transposition technology to move high frequency sounds to a lower frequency which is more accessible to Johnny). When Johnny was young, his audiologist did not recommend a cochlear implant. During the past few years, Johnny’s auditory discrimination has declined significantly (although his thresholds have remained constant) and his audiologist now feels that Johnny would benefit from a cochlear implant. We have felt pressured… Read more »
suzanne
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suzanne
@ Leslie- I was trying to get some idea of what it is like to have severe to profound hearing loss. Someone told me who is late deafend loss at 90db that they compare it too “hearing underwater” now listening to Johnny speak it doesnt sound like he hears underwater his speech is understandable. But every loss is different audiograms are not always the same either. As above in another post I have noted my son’s loss 80 db and 90 db sensorial hearing loss. I have some questions if you do not mind me asking …if you do not… Read more »
pure78
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pure78
That is great every parent should think the best is in their child no matter what problem he or she is facing

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